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Today, 17 February, Murcia delegation of the Spanish Federation of Rare Diseases (ERDF), will hold a briefing for World Rare Disease Day.

It will take place at the Faculty of Medicine of Murcia at 9:30 in the classroom 1 with the aim of raising awareness about the importance of these diseases and give visibility to the problems of those affected and their families

February 28.

World Rare Disease Day

Each year, the Spanish Federation for Rare Diseases (FEDER) held in coordination with the European Organisation for Rare Diseases (EURORDIS) an awareness campaign around World Rare Disease Day (28 February).

Specifically in Spain, the 2014 World Day aims to raise awareness of the importance of caring for our education to achieve true integration and inclusion from the first years of life.

Under the motto "Educate in Rare Diseases, a subject of all," the campaign aims to raise awareness on rare diseases and attract attention to situations of large inequities and injustices that families live.

Since 3 years, ERDF has reasserted this message in different campaigns.

In this way, and to get the message out further, coordinates and promotes ERDF in Spain Solidarity formed a network of associations, corporations, foundations, scientific societies and institutions that carry the message through numerous routes.

In total, more than 300 entities involved in our country at the World Rare Disease Day organized around more than 120 activities across Spain.

All this results in that February is the month in Spain for rare diseases.

A month where rare diseases are placed on the agenda of the media.

It is not just making noise transferring the problem, but seeks to propose alternatives to develop solutions.

Therefore, and in order to continue working to find those solutions, from ERDF year organized a Sensitization Campaign for World Rare Disease Day.

A campaign of all and for all that will bring together all the efforts of more than a decade of work in rare diseases.

A campaign that aims once again, be the epicenter of change for the future of people with rare diseases.

Source: FEDER