Portal de Murcia

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Roundtable "The voices of students and families with rare diseases" (16/03/2017)

The University of Murcia (UMU) celebrates today, Thursday, March 16, at 6:00 p.m., in the auditorium of the Faculty of Education, Campus Espinardo, the round table "The voices of students and families with Rare diseases ".

The objective of the meeting, which will moderate the teacher of this Faculty Josefina Lozano, is to make known the day-to-day of people with rare diseases, as well as show different experiences of inclusive schooling.

Representatives of the Spanish Federation of Rare Diseases (Feder) and associations D'Genes, Asexve (bladder exstrophy) and Amc (congenital multiple arthrogryposis) will participate in the panel.

You can visit the following page: http://tv.um.es/video?id=87611

Source: Universidad de Murcia

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