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The Mayor of Murcia, José Ballesta, the Minister of Health, Encarna Guillen, and the government delegate, Antonio Sanchez-Solis, and the president of the Murcia Association against Cystic Fibrosis, María José Plana, attended this morning at the commemoration National Day of Cystic Fibrosis, a day designed to raise awareness of this chronic and hereditary disease, which took place in the Plaza Belluga, with information tables and the subsequent inflation and prodded 3,000 balloons in the form of 'mascletá', by students of IES Graduate Cascales.

"The region has recorded 141 people with cystic fibrosis, a total of 85 residing in the municipality of Murcia.

Therefore, the City Council have a commitment to Murcia Cystic Fibrosis Association, a pioneering unit that has 425 members, and serving in a personalized way both people with cystic fibrosis and their families and those affected by other related diseases in pediatric age, "the mayor.

In fact, the City has been working 20 years with the Murcia Association against Cystic Fibrosis, within the subsidies granted by the Department of Health and Sports Mutual Aid Associations.

Also it receives a contribution of 8,000 euros from the Department of Social Rights.

Also, José Ballesta took advantage of this day to "recognize the work done by professionals Association, both from its center in El Palmar, as in the homes of the sick and the hospital, as they work directly with the CF Unit the Arrixaca ".

The Association, which was born 25 years ago, is the only national center that performs chest physiotherapy and pioneered the neonatal screening test (heel prick) for diagnosis of the disease.

In addition to physiotherapy, psychological care professionals and provide social assistance to those affected and their families.

From the Murcia Association against Cystic Fibrosis used the day to emphasize the urgent adoption in Spain of the drug Orkambi, a drug approved by the European Medicines Agency in November 2015, which slows the disease, under the slogan "With the new drugs, my future is already possible 'and shouting #OrkambiYa in social networks.

Source: Ayuntamiento de Murcia